PART
1
Hi I want to tell you How I met Scoliosis for the first time, the efforts, my journey with
scoliosis. And how finally I decided to take surgery.
I never Expect it
In 2005, when I’m 14 years old on elementary school every time I
come back to home, I’ll ask my mom to massage my back because of sore, then
when I look in the mirror before bath, I found my left and right hips are not
balance, there is more curve on right hip. Several months later, the sore
doesn’t go away, my dad brought me to some doctor in my hometown and he said
this is the indication of scoliosis you should go to Jakarta and make
consultation with spine specialist.
Hello Brace :)
At that time, I don’t know whether my dad’s work on hometown got
problem or because of my scolio, so our family have to move to this city. Lately I
just know, we are moving because of my scolio have to be handled continuously
and we have to find pool near my house. So we made appointment with Prof. Dr.
H. R. Subroto Sapardan, SpB, SpOT (alm) at Pondok Indah Hospital. After examine
me and my X-ray result, Prof said my curve is 60 degrees, the way out is
surgery and my dad ask him how many percentage of this surgery will success? He
said its 60 : 40 sounds so terrible, we decided to take another way which is
brace.
Brace
Brace cost Rp 6.000.000, my body is being mold to liquid gypsum
and it’s a little bit hot because of hardening process, the gypsum has to be pressed on my curve to straighten
my back. I wear that brace for 7 x 23 hours (took off only when swimming / bath). Can you imagine a
teenage girl who just shocked she has to moved from her beloved hometown and
separated from her bestfriends, to this strange city and strange school, which
I have to make an adaptation with the language and culture, and being mocked by
new friends here. All of this while I’m using that brace which is very hot in
the afternoon. Sometimes strange for them whom touched my body by accident, They thought I’m a robot haha..
I’m obliged to swim everyday (I push my self to swim, maybe if not
because of scolio I can’t swim till now. This is how I see the positive side) I slept on
hardwood boards everynight with brace on me. My hip is blisters and dry because
of the heat.
Scoliosis
The Alternative Treatments
2 times I go to Singapore , and they
have same conclusion as in Jakarta, my mom sometimes can’t hide her sadness in
front of Doctor. So we keep trying to get other way which are:
1. Make more than 5 braces
(change every year)
2. Herbal medicine
3. Looking for fisiotherapist
4. Bought therapy bed
5. Hang on monkey bar 5 times
a day or more
3 times a day, @30-45 minutes
So we can take conclusion that alternatif treatment
could spend a lot of money.
Bye Brace , Im Free Now !
Thats my way up to 2010 I ready for college life, and
its time for freedom because my doctor said there is no need to wear brace
anymore at 21 years old doesn’t bend anymore. But I couldn’t stop swimming, its
good for health and keep my spine on position. I even infiltrate to one of apartment near my dorm to keep
swimming 3-4 times a week ><
I didn’t do check up routine, I thought that my curve
will stay where they are and I already pass the period of vulnerability and I’m
okay I could survive till that moment. But I never expected the sore will came
up and it become worse day after day basically when I’m working, because of my
work based online which is I begin to build my own brand : Pulcher Bags that
time I need to in front of my computer all day long which worsen the sore, I
thought it will gone after massage or go to swim but it didn’t. I kept praying
there will be some miracle and I will be heal one day.
Never stop swimming since 2005
till now :D
The
Decisions
In the middle of pain, I never gave up to persuade my
dad and mom to find the way out, I watch post-op patient video blogging from
youtube there is a lot of them you can find them also. And they live happily as
a heatlhy person after the surgery I found out that tech now growing rapidly
and the fail risk is not up to 1% it so different from 2005
My family recommend me to go to Malaysia, lot of good
doctors and good service with affordable reasonable price compared to Singapore
(price almost same to Jakarta but with totally different services)
They tell me to find Doctor X at Mahkota Hospital,
Mallacca (because of of family member has been treated there, but I read that
he is not spine specialist so I googling Spine specialist at Mahkota and I found
Dr Lee Chee Kean. After preparing all stuffs (tickets, hotel, RM, KL – Malacca transport route), I went to
Malaysia on July 5 , 2017.
See you on part 2: Preparation before Scoliosis Surgery
